Sunday, December 15, 2013

Stones would play inside [his] head, And where [he] slept, They made [their] bed....

I was torn about the lyrical title for today’s blog entry. I was thinking about using Bob Dylan’s “Everybody Must Get Stoned” and changing stoned to stones. But after the last six months, capped off by this week, I couldn't wish stones on anyone. So, I thought with a couple of changes "Stones" by Neil Diamond would work.

So, how are you all doing? If you are ever bored and looking for something fun to do and having a stone removed is suggested, I recommend giving it a pass. It really isn't as much fun as you hear. Oh, and if you have the choice, especially avoid catheters. During a time I got to experience variety of not so fun things, the catheter earned a special place.

I won’t go through the details of the procedure; I actually have no recollection of the procedure. I will say the doctor told us the stone ended up being over 1 cm and after they blasted it there were still six good size pieces plus some crumbs that they gave to us in a plastic vial. I have a stent in my kidney so that it can drain more effectively (it had gotten quite swollen). Getting it removed will be this year’s Christmas present (removal on the 24th).

In general I will say this about my hospital stay. People seem to be much more advanced clinically and procedurally than they are in terms of palliative care or customer service. From what I could tell from blood draws, to injections, to the anesthesia, and the procedure itself everyone I dealt with seemed very competent and professional. In terms of general patient comfort, the experience was quite different from my experience in US hospitals.

A typical joke is that in US hospitals, a staff member is waking you every couple of hours, including to tell you it’s time to go to sleep. Here, there wasn't nearly that kind of attention. It is typical, if not expected, for a family member to stay with the patient 24 hours a day and see to their needs. During the night I spent in the hospital, I could have died and no one would have known for at least five hours. It might have been longer if I hadn't used the nurse call to get an injection for pain.

It might be at least to some measure a comfort with English, but there was also much less information provided to the patient when anything was done. If I hadn't asked, “What is this for?”, on several occasions I would have been given shots, had blood drawn, etc. with no idea of the purpose.

Finally a word on the facility itself and the equipment. I had gotten the impression, as we had made our way in, out, and through outpatient services, that a new addition had been grafted onto an older hospital. Having now been into the heart of the hospital, I know my perception was right. The patient rooms, pre-op, and post-op areas were all a little long in the tooth. I would guess the hospital itself was built in the 70s and has had only minor updating since. The equipment (outside of the OR and diagnostic which seemed modern) was even older vintage. The patient beds were narrow, hard, and only adjusted manually. I am sure my size didn't help but I am not sure anyone would have been comfortable on that bed. Things like gurneys and wheel chairs all seemed about the same vintage and in some degree of disrepair.

All in all, I am grateful to have had the procedure; grateful to have the stone removed; grateful to those whose generosity made the financial challenges moot. I am more than willing to have this be our last significant interaction with the Indian medical system.

That’s enough whining from me. Here’s Rae.

Wait. Wait. I almost forgot the hospital clothing! So, not unexpectedly, I had to wear the gown they provided. The first set was something. Modesty prevents showing pictures (or taking of the same for that matter). The pants were like a cotton speedo with legs. The top was like they brought me one for Rae by mistake. I somehow made it out of the bathroom to the bed without being arrested for indecent exposure. I convinced them I needed a larger set. The second set was exactly the same. One more time. Finally they must have gone to the bariatric ward and brought me a set that fit. Now for the slippers.  When they came to take me to the OR, they told me I couldn't use my own and they brought me a pair of size, oh say, “8” plastic sandals; I wear “13s”. It was a good thing I only had to walk from my bed to the wheelchair and from the wheelchair to the gurney in pre-p. Oh, yeah, I also had to walk from the pre-op to the surgical suite, which I thought was a bit weird.

NOW, here’s Rae.

My turn hmmm. I obviously didn't have any adventures this week other than hospital adventures.  I will try to share a few of my impressions and experiences.

The morning that we checked in, our helper Christina wanted to come to the hospital to be with us.  We felt bad having her take her time for that and also felt that we were big kids and could handle things on our own.  She did come and I have to say that there were times that I really appreciated having her there.  When we’d gone in for all the pre-op testing the week before, they had not given us hard copies of Phil’s cat-scan and ex-ray.  Once we got into his room, they told me that I had to go to the 3rd floor and collect those two items.  Christina went with me and really was a help in getting them collected.  Even with her help we were sent to 5 different places to finally accomplish our mission. Left to my own devices I might still be there trying to get them. 

I know that their system is what they are used to and they think it makes perfect sense, so they seem to think there shouldn't be any confusion to us foreigners.  I still find it hard to put into words how amazing it is to me that everything comes with its own form, paper, or hard copy, and they are able to keep track of things in that format.  Somehow in that mountain of papers they can fumble through and find the ones that are needed for their purposes.  Continually amazes me.

Because we didn't have insurance for this surgery, we felt it was best to have a semi-private room.  Overall it was an okay thing.  We don’t know what was wrong with Phil’s roommate, but initially I was thinking it was something that was terribly contagious.  He was continually coughing, trying to clear his throat and spitting into a container.  Thank heaven for the, I’m sure, germ blocking curtain that divided the room.  As it turned out I don’t think he was contagious, but that curtain didn't make him any less noisy.  According to Phil he was a lot more comfortable in his bed than Phil was because Phil said he was a VERY loud snorer.  I won’t mention the very long and loud fart that he did during the night. 

Because the hospital was located just a couple of miles down the road from our house we decided I should just come home and sleep and then go back the next morning.  If I’d stayed overnight, the chair that I sat on during the day was made up of 3 foam pads stacked on top of each other.  They were intended to be separated and laid out to create my bed.  Toward evening, they came in and handed me a cotton sheet and told me it was for me for my bed.  No pillow or blanket.  After hearing Phil report on his night, I was thankful to have come home for a good night’s sleep, (I know, sounds selfish).  

Phil has talked about his clothing, and the small bed so I have taken a couple of pictures for your viewing pleasure.  His initial outfit was pretty comical and I know would have been pretty uncomfortable if he’d had to try to wear it for his entire stay.  The nurse didn’t seem to believe us that he needed something bigger until she walked behind him, to show us what we were doing wrong, and saw that the bottoms really did fit like a speedo with legs. Here are a couple of pictures that I took that CAN be published without violating decency laws.







It was my intention to take a picture of the hospital from the outside, but always seemed to forget when I arrived there and as we were leaving.  Another thing that I wanted to get a picture of was the man who directed the traffic in front of the hospital.  The first time I saw him he was inside the hospital.  I thought he was some kind of Royal Guard.  He was a very large man, even next to Phil and was wearing a knee length robe and an elaborate head dress.  When I commented on him Phil informed me that he was the guy who directed the traffic in front of the hospital.  Really pretty impressive.  That’s the thing with India, some things look so elaborate, dignified and even regal while other things right next to that are shoddy and pathetic.  India is a country of many contrasts.

In any case, we are glad to have this behind us and hope that it is a once in a life time experience.  We know that his overall care was good and he is on the road to recovery.  With this behind us, hopefully some of our future blogs will be filled with another sort of adventure. Thanks again though to all those who have sent prayers, well wishes and many other forms of support.  We are blessed to have you all in our lives.  



Namaste.

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